EDS Empower Hour - Guest Erika Warren, CEO of Inciteful Med on AI in Complex Chronic ConditionsThis community webinar focused on AI tools in healthcare, specifically featuring Erika Warren, co-founder and CEO of Insightful Med, discussing how patients can use AI safely to research medical conditions and prepare for appointments. Erika… Apr 08 26April 08, 2026Video at EDS Empower Hour Webinar Replays
EDS 101 - What is Ehlers-Danlos syndrome and what do I do if I suspect it?When someone asks how to find an EDS doctor or how to get diagnosed, there's so much overwhelming info. I wrote a 387 book on it- Holding It All Together When You're Hypermobile that was a best-seller inside 48 hours. That tell me too many are… Apr 02 26April 02, 2026Video at EDS Empower Hour Webinar Replays
EDS Empower Hour- Guest Ellen Lenox Smith - Cannabis for Chronic PainThis EDS Empower Hour session with guest Ellen Lennox Smith (a board member of the U.S. Pain Foundation), focused on using cannabis for chronic pain management, particularly in people with Ehlers-Danlos syndrome (EDS) and related conditions.Ellen… Mar 10 26March 10, 2026Video at EDS Empower Hour Webinar Replays
EDS Self-Advocacy When You're Exhausted from a BCPAJoin a BCPA with lived experience in a fast-paced info-packed session on tips to self-advocate with EDS or other connective tissue disorders, plus how to know when to get help and how to find and hire a patient advocate. Plus the new framework for… Feb 16 26February 16, 2026Video at EDS Empower Hour Webinar Replays
EDS Self-Advocacy When You're Exhausted from a BCPAJoin a BCPA with lived experience in a fast-paced info-packed session on tips to self-advocate with EDS or other connective tissue disorders, plus how to know when to get help and how to find and hire a patient advocate. Plus the new framework for… Feb 16 26February 16, 2026Video at EDS Empower Hour Webinar Replays
EDS Empower Hour - Guest Anita Lane, Core Breakthrough Coaching on "Love Bombing Detox"Watch the replay of Anita Lane's talk on why we get sucked in by addictive people, narcissistic personalities and allow love bombing to hijack our brains. You're not weak, but chemically attracted. She shares her 4 R Method to the detox and her… Feb 09 26February 09, 2026Video at EDS Empower Hour Webinar Replays
Private videoThis video is private. Feb 03 26February 03, 2026Video at EDS Empower Hour Webinar Replays
EDS Empower Hour- Guest Chelsea Kasen-Kells Creator of Color Mending™️ Therapy-In this webinar, Christie Cox sits down with Chelsea Kasen-Kells creator of Color Mending™️ Therapy to explore how intuitive coloring can support people living with chronic illness, chronic pain, trauma, and sensory overwhelm. If talk therapy hasn’t… Jan 29 26January 29, 2026Video at EDS Empower Hour Webinar Replays
EDS Empower Hour- Guests Dr. Leslie Russek & Jeannie Di BonIf you live with hEDS or HSD, you probably know what it feels like to spend every PT session reacting to pain. Many hypermobile patients feel stuck chasing pain. In this episode, we will examine why this cycle is so common, and how PT and movement… Nov 18 25November 18, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour - Guest Jessica SalyersWe're talking to an expert about how to get EDS, POTS and MCAS school accommodations in depth with our guest Jessica Salyers, OT and professor. Plus get the super detailed slides where she shares ideas on specific accommodation ideas for… Aug 20 25August 20, 2025Video at EDS Empower Hour Webinar Replays
EDS Pain Expose: Types of EDS Pain - Speaker Katie Volkers, APRN, A to Zebra HealthKatie Volkers, APRN shares with her patients some basics on medical know-how on the types of Ehlers-Danlos syndrome (EDS) pain, the sources and how they impact the body and the brain differently. Plus which types of treatments work well where, and a… Jul 30 25July 30, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour - Guest Jill Brook, Standing Up to POTSSpecial patient researcher guest Jill Brook joined me to talk about POTS and dysautonomia management in the summer sizzle with heat and nutrition/diet tips. Plus she shares her witty doodles from DoodleThru.com. Jul 30 25July 30, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour: Guest - Caroline Kamer, Revival Wellness CoachingLearn how to get your core muscles turned on to aid with posture and spinal stability with simple exercises (handout provided). Plus tips on why its critical to release stuck fascia in hypermobility and EDS.Handout: Foundational Core Exercises at… Jul 17 25July 17, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour- Guest Stephanie Hahn DPT- Talks Pelvic Floor PTStephanie Hahn from Longevity PT and Pilates and co-author of the book A Woman's Guide to Pelvic Health joins for a great overview of what is pelvic floor, how to engage it especially if you're hypermobile. As a fellow hEDS patient and practitioner… Jun 11 25June 11, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour: Dr. Golder wilson on EDS Genetics & TestingEDS expert and geneticist, Dr Wilson, shares his time and knowledge for EDS genetics testing, a deep dive into the genes behind collagen DNA, and tips for getting testing or assistance interpreting testing already done to obtain an EDS diagnosis. He… May 29 25May 29, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour: Guest Dr. Tania DempseyDr. Tania Dempsey joins us to talk about mast cell disorders related to hypermobile Ehlers-Danlos syndrome (hEDS). Her talk starts with her concerns that mast cells and comorbid conditions might be bringing about what she calls an "epidemic" on our… May 29 25May 29, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour: Guest Dr. Akilah CadetLearn from the best, boldest and most badass on how to tear down barriers to healthcare when Dr. Cadet from Change Cadet joins the EDS Empower Hour. As a fellow EDS patient, Board member from the EDS Society and an outspoken advocate and author, she… May 29 25May 29, 2025Video at EDS Empower Hour Webinar Replays
EDS Patient Community Survey on Reclassification ResultsApr 25 25April 25, 2025Video at EDS Empower Hour Webinar Replays
EDS Empower Hour - Jonathan Parr, Parr PTJoin us for a special PT treat with Jonathan Parr, PT and EDS/POTS specialist & 6-Time American Ninja Warrior Veteran and Finalist. He will discuss his unique method for neuromuscular retraining that helping EDS and POTS patient in his clinic. He… Nov 18 24November 18, 2024Video at EDS Empower Hour Webinar Replays
EDS Empower Hour: Guest EDS Advocate Maggie BuckleyJoin me as we kick off a new year with new ideas from a collaborative discussion on the best ways to live well with Ehlers-Danlos syndrome (EDS). World-renowned and legacy advocate Maggie Buckley joins in to share some of her top strategies for… Jan 16 24January 16, 2024Video at EDS Empower Hour Webinar Replays
