Patients After Not Being BelievedPart One of Two: When medical dismissal teaches us to research harder, search longer, question reassurance, and never quite know when it is safe to stop looking for answers Oct 23 26October 23, 2026Article at zebras.substack.com
Stop Dancing and DrivingAttention Swifties! Apparently the car concert now needs a designated DJ Oct 21 26October 21, 2026Article at zebras.substack.com
You Are Not Your DiagnosisViktor Frankl, EDS identity creep, and the one freedom chronic illness doesn’t get to steal. Oct 19 26October 19, 2026Article at zebras.substack.com
My Generation Hid Its Feelings. My Daughter’s Has a Soundtrack.What Twenty One Pilots taught me about mental health, being understood, and the things we’re finally allowed to say. Oct 15 26October 15, 2026Article at zebras.substack.com
Trauma: Is Your Body Betraying You?NEW: Seen & Soothed! Trauma, ACEs, the nervous system, and the survival patterns our bodies may still be carrying long after the danger has passed Oct 12 26October 12, 2026Article at zebras.substack.com
Why Didn’t Anyone Tell Me About OT?The ridiculously practical EDS therapy that can help you shower, cook, think, work, stand, conserve energy, protect your joints and generally make life require fewer gymnastics Oct 09 26October 09, 2026Article at zebras.substack.com
Concierge Care: My Doctor Went Behind a PaywallRise in cash-pay and concierge medicine, when buying more medical attention might help a complex chronic illness patient while understanding health basics are now $ upgrades. Worth subscribing for! Oct 07 26October 07, 2026Article at zebras.substack.com
The Pu-Pu Platter Pain Management Sampler(Yes, P-U-P-U — Not P-O-O, Though Chronic Pain Is Some Shit) Oct 02 26October 02, 2026Article at zebras.substack.com
Final Catch-22: Irony of Certainty vs. Questions In Chronic IllnessThe strange chase: seeking answers, being offered surgery, and wondering when it’s time to stop chasing your body and start living in it + the questions to ask yourself. Sep 30 26September 30, 2026Article at zebras.substack.com
Chronic Catch-22: Advocate for Yourself, But Don’t Be THAT PatientLearn your condition. Know your medications. Read your reports. Speak up. Ask questions. But please don’t appear to know too much, feel too much, ask too much, or arrive suspiciously prepared. Sep 29 26September 29, 2026Article at zebras.substack.com
Chronic Catch-22: I Need a Surgeon, But I Don’t Really WANT SurgerySometimes you spend years trying to find the expert who finally understands your complicated body. Then the expert says, “Yes, I see it. Let’s operate.” Wait. That wasn’t necessarily what I meant. Sep 25 26September 25, 2026Article at zebras.substack.com
Catch 22: Becoming an Expert in Your Illness, But Forget Who You AreThe cruel irony of chronic illness: learning to teach healthcare how to care for your body, while trying not to lose the person living inside it. How I went up a mountain and met myself. Sep 22 26September 22, 2026Article at zebras.substack.com
Chronic Catch-22: Keep Searching, But Stop ChasingAdvocate for yourself. Trust your body. Don’t take no for an answer. But at some point, please stop making your medical chart a full-time investigative podcast. Uh, me? Sep 18 26September 18, 2026Article at zebras.substack.com
Chronic Catch-22: Brace It, But Don’t Depend on the BraceSupport your unstable joints. Build stronger muscles. Use the tools that help you function. But apparently not too much, lest your body discover outsourcing and never work again. Sep 15 26September 15, 2026Article at zebras.substack.com
Chronic Pain: Different Bodies, Same Damn Story15 things people living with chronic pain understand without explanation as we just “get it” Sep 14 26September 14, 2026Article at zebras.substack.com
Doable Mindfulness for Complex Chronic IllnessFor World Mindfulness Day, a reminder that you do not have to become a serene woodland creature to benefit from five quiet minutes. Sep 12 26September 12, 2026Article at zebras.substack.com
Chronic Catch-22: Rest. But Don’t Decondition.Listen to your body. Rest when you need to. Keep moving. Build strength. Don’t push through symptoms. And for heaven’s sake, don’t get deconditioned. Glad we cleared that up. Sep 09 26September 09, 2026Article at zebras.substack.com
Chronic Illness Catch-22's (Part 1 of 5)Wonky ironies. Do this. Don’t do that. Definitely do both. Welcome to chronic illness. And whatever you do, please don’t make yourself sicker trying to get healthier. Sep 03 26September 03, 2026Article at zebras.substack.com
Do Vibration Plates Actually Help?The science, the hype, and whether your connective tissue will thank you… or file a complaint. Aug 31 26August 31, 2026Article at zebras.substack.com
How To Survive Medical GaslightingYou know it, but do you know how to prevent it, even stop it mid-happening and when to walk out? Aug 28 26August 28, 2026Article at zebras.substack.com